Takes place Thursday, July 28th at Braeburn Country Club 

West Newton, Massachusetts (April 12, 2022) – The Northeast Region of the Huntington’s Disease Society of America (HDSA) will host the New England Celebration of Hope: Jeopardy Style on Thursday, July 28th at 4:00 PM- Braeburn Country Club in West Newton. All proceeds support HDSA’s mission to improve the lives of people affected by Huntington’s disease (HD) and their families.

“This is always a memorable evening honoring individuals who have made a difference in the fight against HD,” said Virginia Goolkasian, HDSA’s Northeast Regional Development Officer. “Hope is palpable during the evening as guests and families impacted by HD are inspired meeting the many researchers who attend from Boston’s prolific biotech and pharmaceutical industry working in HD research.  The researchers are moved and further inspired as they meet and listen to the challenges the family members cope with.”

The Celebration of Hope gala is one of the flagship events organized by HDSA’s volunteer-led Chapters and Affiliates nationwide to recognize those who have made an impact in their community while inspiring others to join the fight against Huntington's disease. The event will include a Jeopardy contest for guests as well as dinner, an auction, and hors D’oeuvres. The region will recognize Irina Antonijevic, MD, PhD, Chief Medical Director and Head of R & D at Triplet Therapeutics (Cambridge), and Sue Gieras, who has two adult children with HD and lost her husband due to HD.

​For more information about the event, please contact Virginia Goolkasian (vgoolkasian@hdsa.org, 978-905-5588). Online registration and a donation can be found at NORTHEAST.HDSA.ORG/COH22 

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Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure. Every child of a parent with HD has a 50/50 chance of inheriting the faulty gene. Today, there are approximately 41,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. The symptoms of HD are described as having ALS, Parkinson’s and Alzheimer’s – simultaneously.

The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families.

To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call (800)345-HDSA. 

FOR IMMEDIATE RELEASE

Matthew Santamaria

Communications Manager 

(212) 242-1968 ext. 204 

msantamaria@hdsa.org